Radiation Oncology History/Education/Social Media

PV QA 3 - Poster Viewing Q&A 3

TU_42_2900 - Communicating the External Beam Radiation Experience (CEBRE): A Novel Graphic Narrative Patient Education Tool

Tuesday, October 23
1:00 PM - 2:30 PM
Location: Innovation Hub, Exhibit Hall 3

Communicating the External Beam Radiation Experience (CEBRE): A Novel Graphic Narrative Patient Education Tool
R. Arya1, T. Ichikawa2, B. Callender3, M. DePablo4, K. Novak2, S. Li2, A. Shenoy2, A. Everman2, S. Braunstein2, I. Dec2, S. Lala2, Y. Feng2, L. Biltz2, A. R. R. McCall1, and D. W. Golden1; 1Department of Radiation and Cellular Oncology, University of Chicago, Chicago, IL, 2Illinois Institute of Technology, Chicago, IL, 3Department of Medicine, University of Chicago Medical Center and Pritzker School of Medicine, Chicago, IL, 4University of Chicago, Chicago, IL

Purpose/Objective(s): Effective communication with patients decreases anxiety, pain, and psychological distress. National guidelines recommend readability of patient education materials be at or below a 6th grade level. However, radiation oncology materials average a 10th grade level. The Communicating the External Beam Radiation Experience (CEBRE) discussion guide, a novel graphic narrative educational tool, was developed. A pilot study evaluated perceived benefits of CEBRE.

Materials/Methods: CEBRE was designed as a collaboration between physicians and designers. Designers conducted structured interviews of patients, family members, and radiation oncology clinic staff. Interviews were coded for themes to uncover stakeholder based insights, leading to design principles driving the design of CEBRE. The CEBRE discussion guide comprehensively covers the external beam radiation care path from consultation through follow-up. A “My information” section includes patient-specific information to facilitate a tailored discussion. Readability was measured using the Flesch-Kincaid (FK) test. A pilot perceived benefits study utilized a survey to determine usability and effect on anxiety in patients. Modified versions of the Systems Usability Score (SUS) and Spielberger State-Trait Anxiety Inventory short form (STAI) along with questions unique to CEBRE were included. Patients receiving treatment or in active follow-up and practicing radiation oncologists were asked to review CEBRE and complete separate patient and physician perceived-benefit surveys. Likert-type scores are reported as median [interquartile range].

Results: The CEBRE guide scores a 5.4 FK grade level, meeting national guidelines. 34 patients and 12 radiation oncologists completed perceived benefits surveys. Patients completed a high school/GED (18%), a 2-year degree or some college (50%), or at least 4 years of college (32%). Patient and physician responses were concordant. On a scale of 1-5 for the modified SUS and 1-4 for the modified STAI (“strongly disagree” to “strongly agree”) the median modified SUS is 4[4-5] for each cohort and modified STAI scores were 3[3-4] and 3[3-3.5] for patients and providers, respectively. Both cohorts “agree” CEBRE is usable and would decrease patient anxiety. Compared to a text only pamphlet, the graphic narrative component of CEBRE was rated as “quite” helpful 4[4-5] by both cohorts. Patient qualitative responses revealed that presentation of the CEBRE guide by a care provider would make them feel even more comfortable. Providers reported the CEBRE guide would be “quite helpful” 4[4-5] compared to a text-only pamphlet, that with CEBRE “patients will understand more” 4[4-5], and providers are “extremely likely” 5[3-5] to use CEBRE at initial consultation.

Conclusion: The CEBRE discussion guide is a patient accessible and practical education tool that warrants further investigation in the radiation oncology clinic.

Author Disclosure: R. Arya: None. T. Ichikawa: Independent Contractor; Population Health Sciences Program/OVCHA at UIHealth. B. Callender: None. M. DePablo: None. K. Novak: None. S. Li: None. A. Shenoy: None. S. Braunstein: None. I. Dec: None. A.R. McCall: None. D.W. Golden: Partnership; RadOnc Questions, LLC, HemOnc Review, LLC.

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