Patient Reported Outcomes/Quality of Life
PV QA 4 - Poster Viewing Q&A 4
TU_44_3746 - Exploring the Role of Prostate Cancer Survivors in Managing Survivorship Care
Tuesday, October 23
2:45 PM - 4:15 PM
Location: Innovation Hub, Exhibit Hall 3
Meredith Giuliani, MB, BS
Princess Margaret Cancer Centre: Radiation Oncologist: Employee
AstraZeneca: Advisory Board; Elekta Inc: Honoraria, Travel Expenses
Canadian Association of Radiation Oncology: Chair, Education Committee
Exploring the Role of Prostate Cancer Survivors in Managing Survivorship Care
M. E. Giuliani1,2, N. K. Quartey3, C. N. Catton4, A. D’souza3, E. Kucharski5, M. Maganti6, A. Matthew7, and J. Papadakos3; 1University of Toronto, Toronto, ON, Canada, 2Department of Radiation Oncology, Princess Margaret Cancer Centre, Toronto, ON, Canada, 32. Health Literacy Research Centre, Cancer Education Program, Princess Margaret Cancer Centre, Toronto, ON, Canada, 4Radiation Medicine Program, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, 5Primary Care, Cancer Care Ontario, Toronto, ON, Canada, 6Biostatistics, Princess Margaret Cancer Centre, Toronto, ON, Canada, 7Department of Supportive Care, Princess Margaret Cancer Centre, Toronto, ON, Canada
Purpose/Objective(s): New models of follow-up care are needed to meet the demands of the growing numbers of prostate cancer survivors. These models should leverage shared-care between primary care physicians and oncologists and maximize patient self-management. The purpose of this prospective study is to explore the role that prostate cancer survivors can play in their survivorship care.
Materials/Methods: This prospective cross-sectional study recruited patients who completed treatment >2 years ago at Princess Margaret Cancer Centre. Participants completed a one-time questionnaire including demographics (7-items), cancer health literacy (CHL) (6-items with >4 indicating adequate CHL), self-efficacy (6-items; 1-10 Likert scale), symptom severity (27-items; arithmetic mean of items rated 1-not severe to 10- very severe), and readiness for self-management (8-items). Descriptive statistical analysis, univariable (UVA) and multivariable (MVA) logistic regression analysis were conducted.
Results: 206 patients were recruited from May-November 2017. Median age 72 (range: 47-89), 33% were working, 61% were college/university educated, 78% were Caucasian, 82% were married, and 78% had adequate CHL. Self-efficacy score was high (8.3, range 1.6-10), while symptom severity score was low (1.8, range 0-6.5). Mean readiness for self-management score was 24 (range 20-97.5). On UVA, low income 4.37 (1.93,9.89; p=<0.001), being single (marital status) 2.31 (1.07,5.02; p=0.034) and symptom severity 1.33 (1.05,1.69; p=0.018) were significantly associated with readiness to self-manage. On MVA, only low income 3.99 (1.71,9.35; p=0.014) and symptom severity 1.38 (1.07,1.78; p=0.013) remained significantly associated with readiness to self-manage. Higher readiness to self-manage was predicted for patients with household income less than $49,999/year and patients with higher symptom severity scores. 62% of survivors agree/strongly agree that improving their engagement in their survivorship care is important while 50% agree/strongly agree that they’d like to know more about symptoms and what they can do about them. The most frequently identified barriers to accessing survivorship care were “transportation to appointments” (10.6%), and “lack of communication with doctors” (9.7%).
Conclusion: Prostate cancer survivors are willing to engage in self-management activities with healthcare providers. Support is needed to build self-management skills.
Author Disclosure: M.E. Giuliani: Honoraria; Elekta Inc. Travel Expenses; Elekta Inc. Chair, Education Committee; Canadian Association of Radiation Oncology. N. Quartey: None. C.N. Catton: Research Grant; AbbVie Corporation. Advisory Board; AbbVie Corporation, Bayer Corporation, Estellas Corporation. Chair of Sarcoma Services Committe; CancerCare Ontario. A. D’souza: None.