Neurodegenerative Disease (e.g. MS, Parkinson's disease)

Geriatric Rehabilitation

Symposium

(603249) Patient Engagement Approaches for Improving Research and Clinical Care in Parkinson’s Disease

Presenter(s)

• 

  Michele York, PhD, ABPP-CN

  Associate Professor; Section Head, Neuropsychology
  Baylor College of Medicine
  Houston, Texas
• JB

  Jared Benge, PhD, ABPP

  Director of Neurology Research/Clinical Assistant Professor
  Baylor Scott and White Health/Texas A&M College of Medicine
  Temple, Texas
• 

  Mark Hirsch, PhD

  Senior Scientist
  Carolinas Rehabilitation, Carolinas Medical Center, Atrium Health
  Charlotte, North Carolina

Non-presenting author(s)

• IR

  Israel Robledo, BBS

  Patient Council Member
  THE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH
  New York, New York

Presenter(s)

• SI

  Sanjay Iyer, MD

  Director of the Carolinas Center for Parkinson’s disease and Movement Disorders at Carolinas Medical Center
  Neurosciences Institute / Atrium Health
  Charlotte, North Carolina

Moderator(s)

• 

  Erwin van Wegen, PhD

  Associate Professor
  Amsterdam UMC, location VUmc, Amsterdam Movement Sciences
  Amsterdam, Noord-Holland

This symposium will present innovative patient engagement approaches to encourage the much-needed transformation of healthcare from reactive to preventive and person-centered. We will discuss Parkinson’s disease (PD) patient engagement from several rehabilitation research and clinical approaches including PD patients and care partners perception and priorities of their cognitive symptoms. We will discuss the role of patient advocates in the development and implementation of a cognitive rehabilitation and registry for Deep Brain Stimulation in PD. Finally, we describe the development and implementation of a regionalized professional PD network consisting of physical therapists, nurses, neurologists and fitness professionals at community outpatient clinics.

Learning Objectives:

• • Understand the different approaches to engage patients, caregivers, and clinicians in the research process and the development of therapies to improve patient outcomes
• • Learn about patient engagement approaches aimed to sustain good health and wellbeing in patients with Parkinson’s disease
• • Describe patient-focused engagement programs in a variety of quality improvement research, clinical, and community settings