Paper: Program Description Abstract
It Takes All of Us: Engaging the Community in Biomedical Research and Precision Medicine
Monday, May 6
5:05 PM - 5:20 PM
Room: Columbus CD (East Tower, Ballroom/Gold Level)
Dental Medicine and Cancer Librarian
Assistant Director for Research & Education Services
Background : Through a successfully funded outreach award, a health sciences library expanded upon traditional consumer health information outreach to include the basics of biomedical research and precision medicine. The goal of the project was to engage the public with increased knowledge of: quality health information resources, the research process and the benefits of participation in biomedical research. In addition the project focused on the concept of precision medicine, using the All of Us Research Program as an example of a precision medicine research study.
Description :Public libraries hosted consumer health information presentations by medical librarians. The presentations had three themes: becoming well-informed about conditions and medications using MedlinePlus; understanding the process and benefits of biomedical research studies; and recognizing the All of Us Research Program from NIH as an example of a precision medicine initiative that recruits partners (not subjects) from populations that do not traditionally participate in research. The importance of personal data and informed consent were secondary themes. The All of Us program aims to recruit a highly diverse population of one million or more partners. Presentation participants filled out a brief questionnaire following the event. Hosting organizations received iPads to facilitate ongoing access to health information for their audiences.
Conclusion : This project is still in process.