University of Delaware
Durham, North Carolina – United States
This study will improve the way that chronic symptoms are assessed and addressed in a traditionally underserved medical population – individuals who have sustained sudden-onset injuries to the brain, spine, or limb. I have worked closely with PI Tulsky for well over a decade to improve the way the most important post-injury symptoms are measured in these populations. I have an extensive and successful track record of collaboration with all project investigators and performance sites. Furthermore, I am a leading national expert in the use of qualitative and mixed methods work with key stakeholders, including individuals who have sustained sudden-onset injuries to the brain, spine, or limb, and the clinicians who treat these individuals. I bring a unique perspective into this work and furthermore have ten years of experience training examiners in the administration of patient reported outcomes measures including PROMIS, Neuro-QOL, SCI-QOL, and TBI-QOL. I have served as a co-investigator on the source projects for this proposal and have also served as the PI of two foundation-funded grants to improve the clinical relevance and interpretability of PRO measures for individuals with SCI, I have over 40 peer-reviewed publications in rehabilitation outcomes measurement development, validation, and application, and am well-qualified to perform my role on this project.
Sunday, November 3
1:30 PM – 5:30 PM