Category: Spinal Cord Injury; Health Services Research; International
Objective: identify the factors that explain functioning and well-being of people living with SCI in the context of health, health-related, and other social and political systems, policies, services, and care provision
Design: international community survey
Setting: 28 countries across 6 regions of the World Health Organization (WHO). Will present data from USA survey
Participants (or Animals, Specimens, Cadavers) :
200 individuals 18 years and older with spinal cord injury from United States of America
Administration of 125 items standardized survey that collects information about: (i) Body functions (ii) Activity and participation (iii) Evaluation of work integration and health care services involve questions taken from different tools. (iv) Environmental factors (v) Relevant personal factors (vi) Information on lesion characteristics include self-reported severity and completeness of lesion, etiology, and date of SCI. (vii) Appraisal of health and well-being.
Main Outcome Measure(s) :
Generate evidence on the lived experience of persons with SCI on an international level.
Descriptive reporting of the sample's "Person's Perspective" will be presented
: Results of the InSCI survey provide the basis for continued research and help identify potential targets for interventions to improve the situation of persons living with SCI
Cristina Sadowsky– Clinical Director International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, Maryland