Category: Neurodegenerative Disease (e.g. MS, Parkinson's disease); Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)
To explore the feasibility, effect, and costs of a newly developed inpatient energy management education (IEME)
Feasibility randomized controlled trial with mixed methods analysis.
3-week multidisciplinary inpatient rehabilitation.
Participants (or Animals, Specimens, Cadavers) :
Random sample of 47 persons with MS-related fatigue (FSS >4), >18 years, EDSS (≤6.5). Exclusion criteria: depression or cognitive impairment.
Interventions : Six IEME (intervention) or progressive muscle relaxation (PMR; control) group sessions (1x6h) during a personalized rehabilitation program. IEME was led by an occupational therapist (OT). An individual introduction session was followed by five group sessions on break management, occupational balance, ergonomics, activity analysis, communication. Participants trained the use of energy conservation strategies and planned the implementation of behavioral change in their daily routine.
Main Outcome Measure(s) :
User-experiences was assessed by focus groups and telephone interviews. Amount of group and individual OT-treatment minutes consumed. Change in fatigue impact, self-efficacy, occupational performance and quality of life between baseline (T0), discharge (T1) and 16 weeks follow-up (T2).
IEME participants confirmed the adequacy of the developed program. OTs reported high treatment fidelity. Within-group difference on fatigue impact and some dimensions of quality of life (QoL) at discharge were significant (p
Conclusions : IEME positively influenced the perception of competence in performing daily activities and reduced the perceived influence of MS-fatigue on physical functioning. This cost-friendly intervention may help persons with MS-related fatigue to better manage their energy.
Ruth Hersche– Reseacher-2rLab, University of Applied Sciences and Arts of Southern Switzerland (SUPSI), Manno, Ticino
Andrea Weise– Owner firm for occupational therapy, education for OTs & research; teacher continuing education, www.ergotherapie-impulse.ch www.zhaw.ch, Vättis, Sankt Gallen
Sara Della Bella– Reasearcher and Lecturer, SUPSI (University of Applied Sciences and Arts of Southern Switzerland), Cassano Magnago, Lombardia
Gisela Michel– Associate Professor, University of Lucerne, Luzern, Luzern
Marco Marco– Professor, University of Applied Sciences and Arts of Southern Switzerland, Manno, Ticino
Jan Kool– Head of Research, Rehaklinik Valens, Valens, Sankt Gallen