Category: Pediatric Rehabilitation; Technology (e.g. robotics, assistive technology, mHealth); Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)
Objective : To evaluate feasibility, acceptability, and preliminary effectiveness of the Participation and Environment Measure-Plus (PEM+), a web-based care planning application that was designed with and for caregivers to support family-centered participation-focused care.
Design : Phase 1 single-arm pilot study.
Setting : An early intervention program and early childhood educational setting.
Participants (or Animals, Specimens, Cadavers) : Convenience sample of 22 caregivers of children aged 0–5 years receiving rehabilitation services, who reported dissatisfaction with child’s participation.
Interventions : Participants were provided unlimited access to PEM+ for two weeks to create participation-focused care plans for their child.
Main Outcome Measure(s) : Feasibility was assessed via retention rates, median completion time, and percentage of caregivers completing PEM+ independently. To assess acceptability and preliminary effectiveness, participants completed the Usefulness, Satisfaction, and Ease of Use Questionnaire and two items on the impact of PEM+ on caregiver self-efficacy for addressing their child’s participation.
Results : Eighteen caregivers (82%) completed at least one iteration of PEM+. Median completion time was 13 minutes, and 17 (94%) completed PEM+ independently. Mean acceptability ranged from 3.80-4.97 (SD 1.25-1.97), out of 7. Mean preliminary effectiveness of PEM+ on caregiver self-efficacy were 4.72 (SD 2.24) for “what I think can improve participation” and 4.61 (SD 1.85) for “what I will do next”, out of 7. Strong positive associations were found between PEM+ acceptability and caregiver self-efficacy (i.e., usefulness, r=.785, p
Conclusions : PEM+ is feasible for caregivers and has potential to be an acceptable, innovative option for improving caregiver self-efficacy when creating participation-focused care plans. Results informed PEM+ optimizations prior to undertaking a definitive Phase 2 efficacy trial.
Vera Kaelin– PhD Student, Graduate Research Assistant, University of Illinois at Chicago, Chicago, Illinois
Jessica Jarvis– Postdoctoral Scholar, University of Pittsburgh, Pittsburgh, Pennsylvania
Dana Anaby– Associate Professor, McGill University, Montréal, Quebec
Rachel Teplicky– Business and Engagement Officer, CanChild, McMaster University, Hamilton, Ontario
Mary Khetani– Associate Professor, University of Illinois at Chicago, Chicago, Illinois