Category: Brain Injury; Health Services Research; Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)
To capture the need for TBI educational materials and resources for those affected by traumatic brain injury (TBI) years after inpatient rehabilitation discharge.
This observational study tracked the different types of resources and educational TBI factsheets from Model Systems Knowledge Translation Center (MSKTC) shared with TBI Model Systems (TBIMS) participants and caregivers who completed Form II at Year 1, 2 and 5.
Setting : Two urban hospitals in New York City.
Participants (or Animals, Specimens, Cadavers) : Participants and caregivers (N=94) followed between June 2018 and February 2019. Participants were primarily male (83%), Hispanic (37.2%) or White (34.0%), and spoke English (77.7%); and had an average age of 52.
Provided resources and educational information after each completed follow-up.
Main Outcome Measure(s) : MSKTC factsheets and resources include hospital-outpatient services and TBI internet resources including advocacy and support.
Descriptive statistics were used to analyze the most requested materials at years 1, 2 and 5. At year 1, participants (N=35) requested internet resources (63.6%) and hospital-outpatient services (22.7%), and the following TBI educational materials: introduction to TBI (59.1%), seizures, alcohol use, cognitive problems, balance problems, and memory (22.7% per topic). At year 2, participants (N=25) requested internet resources (48.0%), and educational materials: introduction to TBI (64.0%), headaches, cognitive problems, and seizures (16.0% per topic). At Year 5, participants (N=10) requested internet resources (100.0%) and hospital-outpatient services (40.0%).
As scientific evidence classifies TBI as a chronic condition, it is important to understand the needs and knowledge gaps of those affected by TBI. These results suggest case management is necessary throughout inpatient rehabilitation and immediately after discharge, but also throughout the post-injury period in order to help individuals attain and access appropriate service referrals, resources and educational materials as needs change over time.
Natalie Jenkins– Research Coordinator, NYU Langone Health at Rusk Rehabilitation, New York, New York
Olga Garduño-Ortega– Research Coordinator, NYU Langone Health Rusk Rehabilitation, New York, New York
Michelle Smith– Assistant Research Scientist, NYU Langone Health, New York, New York
Tamara Bushnik– Associate Professor, Rusk Rehabilitation, NYU Langone Health, New York, New York