Category: Brain Injury; Cross-Cutting
Objective : This presentation will describe results from a one-day participatory action meeting that was held at the beginning of the 'Integrating Brain Injury, Mental Health, and Addictions Research Program', aimed at identifying emerging/ongoing gaps and further refining the research methodology for this program.
Design : Breakout working groups were conducted to facilitate discussion and networking across sectors. An evaluation form was distributed to attendees at the end of the meeting to anonymously collect feedback on the meeting.
Participants (or Animals, Specimens, Cadavers) :
Representatives from consumer organizations serving the TBI and/or MHA populations were invited, including frontline workers from housing and criminal justice sectors, non-governmental organizations, non-profit advocacy associations, individuals with lived experience of TBI and MHA, researchers, government/regulatory and professional/industry associations.
Main Outcome Measure(s) :
Emerging/ongoing gaps in TBI and/or MHA care and knowledge.
Seventy individuals participated in the meeting, who identified the following emerging/ongoing gaps: (a) knowledge gaps exist regarding the prevalence and consequences of TBI among those who are incarcerated, homeless, or survivors of IPV; (b) provision of accommodations that will support cognitive and communication challenges and sensitive communication practices is need; (c) there is currently limited information on the barriers and challenges that caregivers for individuals with TBI face, and how to mitigate these challenges; and (d) training and education about TBI, how to screen, and access supports is needed. The following feedback were provided to further refine the research methodology: (a) stigma, judgement, and fear of disclosure are of paramount importance during the development of research questions, training and educational materials; (b) a TBI can occur even without a loss of consciousness – it is important to capture these individuals in screening; and (c) training and education materials should be trauma-informed and incorporate respectful, cultural, and gender-neural and gender-sensitive language.
This meeting was evaluated by our participants to be excellent (average rating of 3.4/4), who highlighted information exchange, learning opportunities, and network as positive features of the meeting. Seventy percent voted for this to be an annual event, and some participants noted that a 2-day event should be considered. This meeting was an important first step in continuing the co-creation of research that is central to our research grant to support the integration of services for those with TBI and MHA.
Angela Colantonio– Professor and Director, University of Toronto, Toronto, Ontario
Halina (Lin) Haag– PhD Candidate, Wilfrid Laurier University, Toronto, Ontario
Flora Matheson– Scientist, Li Ka Shing Knowledge Institute - St. Michael's Hospital, Toronto, Ontario
Pia Kontos– Senior Scientist, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario
Alisa Grigorovich– Post-Doctoral Fellow, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario
Robert Balogh– Associate Professor, University of Ontario Institute of Technology, Oshawa, Ontario
Robert Mann– Senior Scientist, Centre for Addiction and Mental Health, Toronto, Ontario
Emily Nalder– Assistant professor (tenure stream), University of Toronto, Faculty of Medicine, Toronto, Ontario
Bonnie Kirsh– Professor, University of Toronto, Toronto, Ontario
Richard Riopelle– Chief Research Officer, Ontario Neurotrauma Foundation, Toronto, Ontario
Vincy Chan– Scientific Associate III, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario
Catherine Wiseman-Hakes– Researcher, University of Toronto, Toronto, Ontario