Caregiving for Individuals with Chronic Illness or Injury
Intensive Cross Cutting Lightning Round
This presentation highlights findings from a qualitative study of lived experiences of adolescents and young adults (AYAs) with spinal cord injuries (SCIs) and their caregivers returning to home and community after injury. Life changed dramatically after SCI for AYAs, their caregivers, and families. AYAs' day-to-day needs pushed caregiving responsibilities into the forefront of caregivers' lives at a time when AYAs were otherwise gaining independence. Caregivers described ways in which their goals or ideas about AYA development impacted their actions. Examining caregiving practices in a developmental framework can shed light on significant sources of stress or burden for caregivers.