Caregiving for Individuals with Chronic Illness or Injury
Intensive Cross Cutting Lightning Round
We enrolled eighteen patient-caregiver dyads after moderate to severe traumatic brain injury in a qualitative exploratory study using semi-structured interviews. Caregivers were interviewed within 72 hours of injury, one month, three months, and six months. When able, we interviewed survivors. Five main themes were identified in the qualitative analysis: finding information about TBI, managing emotions and behaviors, physical care, instrumental care, and caregiver's own emotional and health needs. Experiences varied depending on time since injury, discharge disposition, functional neurologic outcome, caregiver access to resources, and likely multiple other factors.